Who are we?
We are a very informally linked group that was set up in 1999 by Carolyn Blain, who, having experienced the traumas of Pemphigus Vulgaris, wanted to offer support to other PEM Patients or carers.
Carolyn is now our Chair and the administration is done by Isobel, who was diagnosed with mucous membrane pemphigoid in 1995. Our Treasurer is Kal Patel, who is also a Pemphigus Vulgaris patient.
Design and development of our website is managed by Ingrid, a PEM Friend with bullous pemphigoid.
We have a very active private Facebook group (see link at the bottom of the page), as well as a number of people on e-mail distribution.
Although we are focussed on people in the UK who have been diagnosed with either Pemphigus or Pemphigoid, or those who care for them, we are affiliated with other UK organisations and International groups who support us in our goals. (See more)
Our funding currently comes from ad hoc or regular donations on a voluntary basis from our members.